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Clinical trialNCT00001373RecruitingObservational

Familial Mediterranean Fever and Related Disorders: Genetics and Disease Characteristics

SponsorNational Human Genome Research Institute (NHGRI)Enrollment5,000ALPK1AutoinflammationFamilial Mediterranean Fever (FMF)FeverGenetic DiseasesPeriodic Fever+1 more conditions
View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

  • Benjamin D Solomon, M.D.

    National Human Genome Research Institute (NHGRI)

    Principal Investigator

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

5 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States
  • Childrens National Medical Center

    Washington D.C., District of Columbia, United States

    Completed
  • Johns Hopkins University

    Baltimore, Maryland, United States

    Completed
  • National Institutes of Health Clinical Center

    Bethesda, Maryland, United States

    Recruiting
  • Walter Reed National Medical Center

    Bethesda, Maryland, United States

    Completed
  • University of Pittsburgh

    Pittsburgh, Pennsylvania, United States

    Not, yet, recruiting

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
10 Mar 1994
Primary completion
Completion
Last update posted
10 Jul 2026
Registered enrollment
5,000
Registry id
NCT00001373

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.