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Clinical trialNCT00076102CompletedPhase 2Interventional

Pirfenidone in Children and Young Adults With Neurofibromatosis Type I and Progressive Plexiform Neurofibromas

SponsorNational Cancer Institute (NCI)Enrollment36Neurofibroma, PlexiformNeurofibromatosis 1
View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

  • Brigitte C Widemann, M.D.

    National Cancer Institute, National Institutes of Health

    Principal Investigator

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

15 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States
  • University of Alabama

    Birmingham, Alabama, United States

  • Childrens National Medical Center

    Washington D.C., District of Columbia, United States

  • Childrens Memorial Hospital, Chicago

    Chicago, Illinois, United States

  • Johns Hopkins Oncology Center

    Baltimore, Maryland, United States

  • National Institutes of Health Clinical Center, 9000 Rockville Pike

    Bethesda, Maryland, United States

  • Childrens Hospital, Dana-Farber Cancer Institute

    Boston, Massachusetts, United States

  • Mayo Clinic, Rochester

    Rochester, Minnesota, United States

  • St. Louis Children'S Hospital

    St Louis, Missouri, United States

  • Beth Israel Medical Center

    New York, New York, United States

  • Suny Upstate Medical University

    Syracuse, New York, United States

  • Cleveland Clinic

    Cleveland, Ohio, United States

  • Oregon Health Sciences University

    Portland, Oregon, United States

  • Childrens Hospital, Philadelphia

    Philadelphia, Pennsylvania, United States

  • Childrens Hospital, Pittsburgh

    Pittsburgh, Pennsylvania, United States

  • Texas Children'S Hospital

    Houston, Texas, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
21 Jul 2004
Primary completion
1 Apr 2010
Completion
1 Apr 2010
Last update posted
23 Apr 2018
Registered enrollment
36
Registry id
NCT00076102

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.