Canadian Fabry Disease Initiative (CFDI) National Registry
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Michael L West, MD
Queen Elizabeth II Health Sciences Centre (Capital District Health Authority), Halifax, Nova Scotia, Canada
Principal Investigator
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
5 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- Alberta Children'S Hospital
Calgary, Alberta, Canada
Aneal Khan, MDRecruiting - Vancouver General Hospital Adult Metabolic Diseases Clinic
Vancouver, British Columbia, Canada
Anna Lehman, MD, FRCPCRecruiting - Queen Elizabeth Ii Health Sciences Centre
Halifax, Nova Scotia, Canada
Michael L West, MDRecruiting - Toronto Western Hospital
Toronto, Ontario, Canada
Mark R Iwanochko, MD, FRCPCRecruiting - University of Montreal, Department of Medicine
Montreal, Quebec, Canada
Daniel Bichet, MDRecruiting
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 31 Jan 2007
- Primary completion
- 31 Oct 2029
- Completion
- 31 Oct 2029
- Last update posted
- 15 Feb 2024
- Registered enrollment
- 600
- Registry id
- NCT00455104
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.