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Clinical trialNCT00552045CompletedObservational

Epilepsy Phenome/Genome Project

SponsorUniversity of California, San FranciscoEnrollment4,150EpilepsyInfantile SpasmsLennox-Gastaut SyndromeLocalization-related EpilepsyPeriventricular HeterotopiasPolymicrogyria
View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

  • Daniel Lowenstein, MD

    University of California, San Francisco, Department of Neurology

    Principal Investigator
  • Ruben Kuzniecky, MD

    New York University, Comprehensive Epilepsy Center

    Principal Investigator

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

25 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Argentina
  • Hospital General Agudos Jose Maria Ramos Mejia

    Buenos Aires, Argentina

Australia
  • University of Melbourne

    Melbourne, Victoria, Australia

United States
  • University of Alabama at Birmingham, Epilepsy Center, 1719 6th Ave S, Circ, Ste 312

    Birmingham, Alabama, United States

  • Mayo Clinic College of Medicine Arizona

    Phoenix, Arizona, United States

  • University of California, San Francisco, 400 Parnassus, Room 847

    San Francisco, California, United States

  • the Children'S Hospital

    Denver, Colorado, United States

  • Mayo Clinic College of Medicine Florida

    Jacksonville, Florida, United States

  • Rush Presbyterian St. Luke'S Medical Center, 1653 West Congress Parkway

    Chicago, Illinois, United States

  • Johns Hopkins University, Meyer 2-147, 600 North Wolfe Street

    Baltimore, Maryland, United States

  • Children'S Hospital Boston, 300 Longwood Ave.

    Boston, Massachusetts, United States

  • University of Michigan Medical Center, Department of Neurology, 5021 Bsrb, 109 Zina Pitcher Place

    Ann Arbor, Michigan, United States

  • Mayo Clinic College of Medicine, 200 First St., Sw

    Rochester, Minnesota, United States

  • Washington University

    St Louis, Missouri, United States

  • Saint Barnabas Medical Center, Institute of Neurology, 101 Old Short Hills Road, 4th Floor, Suite #415

    West Orange, New Jersey, United States

  • Comprehensive Epilepsy Center, Nyu Medical Center, 403 E. 34th Street, 4th Floor

    New York, New York, United States

  • Gertrude H. Sergievsky Center, Columbia University, 630 West 168th Street, P&s Box 16 (no Patient Enrollment)

    New York, New York, United States

  • Albert Einstein College of Medicine, 111 East 210th St.

    The Bronx, New York, United States

  • Cincinnati Children'S Hospital Medical Center, 3333 Burnet Avenue

    Cincinnati, Ohio, United States

  • Cleveland Clinic

    Cleveland, Ohio, United States

  • Children'S Hospital of Philadelphia, 34th and Civic Center Blvd., 6th Floor Wood Bldg-Neurology

    Philadelphia, Pennsylvania, United States

  • Children'S Hospital of Pittsburgh of Upmc

    Pittsburgh, Pennsylvania, United States

  • Vanderbilt University Medical Center

    Nashville, Tennessee, United States

  • University of Texas Health Science Center at Houston

    Houston, Texas, United States

  • University of Virginia Health System

    Charlottesville, Virginia, United States

  • Seattle Children'S Hospital

    Seattle, Washington, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
30 Nov 2007
Primary completion
31 Dec 2013
Completion
31 Oct 2018
Last update posted
13 Nov 2018
Registered enrollment
4,150
Registry id
NCT00552045

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.