Clinical trialNCT00557908CompletedObservational

The Von Willebrand Disease (VWD) International Prophylaxis Study

SponsorSkane University HospitalEnrollment105Von Willebrand Disease

View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

The von Willebrand Disease Prophylaxis Network (VWD PN) is an international study group formed with the goal of investigating the role of prophylaxis in clinically severe VWD that is non-responsive to other treatment(s).

clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

Erik Berntorp, MD, PhD
Skåne University Hospital, Malmö, Sweden
Principal Investigator
clinicaltrials.gov ↗
Thomas Abshire, MD
Versiti Blood Health
Principal Investigator
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

3 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Sweden

Skåne University Hospital
Malmö, Sweden

United States

Rho, Inc.
Chapel Hill, North Carolina, United States
Bloodcenter of Wisconsin
Milwaukee, Wisconsin, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

The drug and biological interventions registered on this study, normalized to their RxNorm ingredient where possible.

VWF/FVIII products

Linked drugs open the directory filtered to KOLs working with them.clinicaltrials.gov ↗

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 30 Jun 2007
Primary completion: 28 Feb 2013
Completion: 28 Feb 2013
Last update posted: 6 Oct 2017
Registered enrollment: 105
Registry id: NCT00557908

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.