Evaluating People With Thalassemia: The Thalassemia Longitudinal Cohort (TLC) Study
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Ellis Neufeld, MD, PhD
Boston Children's Hospital
Study Chair - Janet Kwiatkowski, MD
Children's Hospital of Philadelphia
Study Chair
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
14 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- British Columbia Children'S Hospital
Vancouver, British Columbia, Canada
- Toronto General Hospital
Toronto, Ontario, Canada
- Toronto Sick Kids
Toronto, Ontario, Canada
- Royal Free and University College London Medical School
London, England, United Kingdom
- Children'S Hospital of Los Angeles
Los Angeles, California, United States
- Children'S Hospital of Oakland
Oakland, California, United States
- Stanford Hospital
Stanford, California, United States
- Children'S Healthcare of Atlanta
Atlanta, Georgia, United States
- Children'S Memorial Hospital Chicago
Chicago, Illinois, United States
- Children'S Hospital Boston
Boston, Massachusetts, United States
- Weill Medical College of Cornell University
New York, New York, United States
- Children'S Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
- Southwestern Medical Center at Dallas
Dallas, Texas, United States
- Baylor College of Medicine
Houston, Texas, United States
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 31 May 2007
- Primary completion
- 31 Dec 2010
- Completion
- 30 Jun 2011
- Last update posted
- 11 Nov 2011
- Registered enrollment
- 416
- Registry id
- NCT00661804
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.