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Clinical trialNCT00700414RecruitingObservational

International Pediatric Adrenocortical Tumor Registry

SponsorSt. Jude Children's Research HospitalEnrollment9,999Adrenocortical Tumor
View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

This study aims to collect demographic and medical information including detailed family history of cancer of children and adolescents with adrenocortical tumors in order to learn more about the clinical and epidemiological aspects, treatment modalities, and outcome of patients with this rare disease, worldwide. In addition, investigators at St. Jude Children's Research Hospital (SJCRH) plan to perform molecular studies of tumor cells aimed to clarify the role of the TP53 gene and other genetic pathways in these tumors. They aim to obtain relevant biological material from participants with adrenocortical tumor (ACT), their biological parents, and relatives for determination of the TP53 germline status, molecular studies of the TP53 gene, and other molecular pathways.
clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

5 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States
  • Stanford University

    Stanford, California, United States

    Completed
  • All Children'S Hospital/st. Petersburg Hospital

    St. Petersburg, Florida, United States

    Completed
  • the Children'S Medical Center

    Dayton, Ohio, United States

    Mukund Dole, MD
    Recruiting
  • St. Jude Children'S Research Hospital

    Memphis, Tennessee, United States

    Raul C Ribeiro, MD
    Recruiting
  • Cook Children'S Medical Center

    Fort Worth, Texas, United States

    Completed

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
1 Oct 2001
Primary completion
31 Dec 2040
Completion
31 Dec 2040
Last update posted
22 May 2026
Registered enrollment
9,999
Registry id
NCT00700414
clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.