Clinical trialNCT00872833CompletedObservational

Assessment of Pain in People With Thalassemia Who Are Treated With Regular Blood Transfusions

SponsorCarelon ResearchEnrollment32Thalassemia

View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

Thalassemia is an inherited blood disorder that can result in mild to severe anemia. Regular blood transfusions, which refresh the healthy red blood cell supply, are one treatment for thalassemia. People with thalassemia often experience pain, but the exact source of pain remains unknown. This study will examine how pain varies during the blood transfusion cycle in people with thalassemia who are treated with regular blood transfusions.

clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

Alexis A. Thompson, MD, MPH
Ann & Robert H Lurie Children's Hospital of Chicago
Study Chair
clinicaltrials.gov ↗
Brigitta Mueller, MD
Baylor College of Medicine
Study Chair
clinicaltrials.gov ↗
Dru Foote, NP
Children's Hospital and Research Institute Oakland
Principal Investigator
clinicaltrials.gov ↗
Elliott Vichinsky, MD
UCSF Benioff Children's Hospital Oakland
Study Chair
clinicaltrials.gov ↗
Janet Kwiatkowski, MD
Children's Hospital of Philadelphia
Study Chair
clinicaltrials.gov ↗
Jeanne Boudreaux, MD
Children's Healthcare of Atlanta
Study Chair
clinicaltrials.gov ↗
Michael Jeng, MD
Stanford University
Study Chair
clinicaltrials.gov ↗
Nancy Olivieri, MD
University Health Network - Toronto General Hospital
Study Chair
clinicaltrials.gov ↗
Patricia J. Giardina, MD
Weill Medical College of Cornell
Study Chair
clinicaltrials.gov ↗
Thomas Coates, MD
Children's Hospital Los Angeles
Study Chair
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

9 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Canada

University Health Network - Toronto General Hospital
Toronto, Ontario, Canada

United States

Children'S Hospital of Los Angeles
Los Angeles, California, United States
Children'S Hospital Research Center Oakland
Oakland, California, United States
Stanford University - School of Medicine
Stanford, California, United States
Children'S Healthcare of Atlanta
Atlanta, Georgia, United States
Children'S Memorial Hospital - Chicago
Chicago, Illinois, United States
Weill Medical College of Cornell
New York, New York, United States
Children'S Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
Baylor College of Medicine
Houston, Texas, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 31 Jul 2009
Primary completion: 31 Oct 2010
Completion: 31 Oct 2010
Last update posted: 7 Oct 2015
Registered enrollment: 32
Registry id: NCT00872833

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.