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Clinical trialNCT01027884CompletedPhase 3Interventional

Phase III Study of Idebenone in Duchenne Muscular Dystrophy (DMD)

SponsorSanthera PharmaceuticalsEnrollment65Ambulatory CareMuscular Dystrophy, Duchenne
View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

  • Ana Camacho Salas, MD

    Hospital Universitario 12 de Octubre

    Principal Investigator
  • Ass. Prof. Jan Verschuuren, MD, PhD

    Leiden University Medical Center (LUMC), 2300 RC Leiden, the Netherlands

    Principal Investigator
  • Barry Byrne, MD

    University of Florida

    Principal Investigator
  • Bryan W. Burnette, MD

    Monroe Carell Jr. Children's Hospital at Vanderbilt

    Principal Investigator
  • Craig McDonald, MD

    University of California, Davis

    Principal Investigator
  • Dr. Günther Bernert, Prim. Univ. Doz.

    Vorstand der Abteilung für Kinder- und Jugendheilkunde, Gottfried v. Preyer'sches Kinderspital, 1100 Wien, Austria

    Principal Investigator
  • Dr. Pierre-Yves Jeannet, Médecin Associé, MER

    Unité de Neuropédiatrie, CHUV - BH11, 1011 Lausanne-CH, Switzerland

    Principal Investigator
  • Dr. Ulrike Schara, MD, PhD

    Universitätsklinikum Essen, D-45122 Essen, Germany

    Principal Investigator
  • Ericka Simpson, MD

    Methodist Neurological Institute, Houston

    Principal Investigator
  • Gihan Tennekoon, MD

    Division of Neurology - The Children's Hospital of Philadelphia - 34th Street and Civic Center Blvd, Philadelphia, PA 19104-1771, USA

    Principal Investigator
  • Janbernd Kirschner, MD

    Universitätsklinik Freiburg Zentrum für Kinderheilkunde und Jugendmedizin

    Principal Investigator
  • Jean-Marie Cuisset, MD

    Hôpital Roger Salengro, CHRU, Service de neurologie infantile, Lille, France

    Principal Investigator
  • Juan Jesus Vilchez, MD

    Hospital Universitari y Politècnic La Fe de Valencia

    Principal Investigator
  • Ksenija Gorni, MD

    Azienda Ospedaliera Niguarda Ca'Granda Centro Clinico Nemo

    Principal Investigator
  • Luisa Politano, MD

    Azienda Ospedaliera Universitaria della Seconda Università degli Studi di Napoli

    Principal Investigator
  • Maria Grazia Nadia D'Angelo, MD

    Fondazione IRCCS "Eugenio Medea"

    Principal Investigator
  • Michele Yang, MD

    Children's Hospital Colorado

    Principal Investigator
  • Prof. Gunnar Buyse, MD, PhD.

    University Hospitals Leuven, B-3000, Belgium

    Principal Investigator
  • Prof. Thomas Sejersen, MD, PhD

    Astrid Lindgrens Barnsjukhus- Karolinska Universitetssjukhuset, SE-17176 Stockholm, Sweden

    Principal Investigator
  • Prof. Thomas Voit, MD, PhD

    Université Pierre et Marie curie VI - Institut de Myologie - groupe hospitalier Pitié Salpétrière - 47/83 boulevard de l'hôpital, 75651 Paris Cedex 13, France

    Principal Investigator
  • Susan Apkon, MD

    Seattle Children's Hospital

    Principal Investigator
  • Susan Iannaccone, MD

    University of Texas Southwestern Medical Center, TX, USA

    Principal Investigator
  • Susan Sparks, MD

    The Charlotte-Mecklenburg Hospital Authority, Charlotte, NC, USA

    Principal Investigator

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

23 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Austria
  • Dr. Günther Bernert, Prim. Univ. Doz.

    Vienna, Austria

Belgium
  • University Hospitals Leuven- Children Hospital

    Leuven, Belgium

France
  • Hôpital Roger Salengro, Chru Lille

    Lille, France

  • Prof. Thomas Voit , Md, Phd

    Paris, France

Germany
  • Universitätsklinikum Essen, Zentrum Für Kinderheikunde

    Essen, Germany

  • Universitätsklinik Freiburg Zentrum Für Kinderheilkunde Und Jugendmedizin

    Freiburg im Breisgau, Germany

Italy
  • Fondazione Irccs "eugenio Medea"

    Bosisio Parini, Lecco, Italy

  • Azienda Ospedaliera Niguarda Ca' Granda Centro Clinico Nemo

    Milan, Italy

  • Azienda Ospedaliera Universitaria Della Seconda Università Degli Studi Di Napoli

    Naples, Italy

Netherlands
  • Ass. Prof. Jan Verschuuren , Md, Phd

    Leiden, P.O. Box 9600, Netherlands

Spain
  • Hospital Universitario 12 de Octubre

    Madrid, Spain

  • Hospital Universitario Y Politécnico la Fe

    Valencia, Spain

Sweden
  • Prof. Thomas Sejersen, Md, Phd

    Stockholm, Sweden

Switzerland
  • Chuv Lausanne Neuropediatrie

    Lausanne, Switzerland

United States
  • University of California Davis Medical Center

    Sacramento, California, United States

  • Children'S Hospital Colorado

    Aurora, Colorado, United States

  • University of Florida

    Gainesville, Florida, United States

  • Carolinas Medical Center, Neurosciences and Spine Institute

    Charlotte, North Carolina, United States

  • the Children'S Hospital of Philadelphia

    Philadelphia, Pennsylvania, United States

  • Monroe Carell, Jr. Children'S Hospital at Vanderbilt

    Nashville, Tennessee, United States

  • University of Texas Southwestern Medical Center

    Dallas, Texas, United States

  • Methodist Neurological Institute

    Houston, Texas, United States

  • Seattle Children'S Hospital

    Seattle, Washington, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
31 Jul 2009
Primary completion
31 Jan 2014
Completion
30 Apr 2014
Last update posted
19 Oct 2015
Registered enrollment
65
Registry id
NCT01027884

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.