Natural History Study of SCID Disorders
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Christopher C. Dvorak, MD
UCSF Children's Hospital
Principal Investigator - Morton J. Cowan, MD
UCSF Children's Hospital
Principal Investigator
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
44 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- Alberta Children'S Hospital
Calgary, Alberta, Canada
- British Columbia Children'S Hospital
Vancouver, British Columbia, Canada
- Cancer Care Manitoba
Winnipeg, Manitoba, Canada
- the Hospital for Sick Children
Toronto, Ontario, Canada
- Chu Sainte-Justine
Montreal, Quebec, Canada
- University of Alabama at Birmingham
Birmingham, Alabama, United States
- Phoenix Children'S Hospital
Phoenix, Arizona, United States
- Children'S Hospital Los Angeles
Los Angeles, California, United States
- University of California, Los Angeles
Los Angeles, California, United States
- Lucile Salter Packard Children'S Hospital at Stanford
Palo Alto, California, United States
- University of California San Francisco Children'S Hospital
San Francisco, California, United States
- Children'S Hospital Denver
Denver, Colorado, United States
- Alfred I. Dupont Hospital for Children/nemours
Wilmington, Delaware, United States
- Children'S National Medical Center
Washington D.C., District of Columbia, United States
- Johns Hopkins All Children'S Hospital
St. Petersburg, Florida, United States
- Children'S Healthcare of Atlanta/emory University School of Medicine
Atlanta, Georgia, United States
- Ann & Robert H. Lurie Children'S Hospital of Chicago
Chicago, Illinois, United States
- Children'S Hospital/louisiana State University Health Sciences Center
New Orleans, Louisiana, United States
- Nih Clinical Center Genetic Immunotherapy Section
Bethesda, Maryland, United States
- Children'S Hospital Boston
Boston, Massachusetts, United States
- University of Michigan Health System
Ann Arbor, Michigan, United States
- University of Minnesota Medical Center
Minneapolis, Minnesota, United States
- Mayo Clinic Hospital
Rochester, Minnesota, United States
- Cardinal Glennon Children'S Medical Center
St Louis, Missouri, United States
- Washington University St Louis Children'S Hospital
St Louis, Missouri, United States
- Hackensack University Medical Center
Hackensack, New Jersey, United States
- Memorial Sloan-Kettering Cancer Center
New York, New York, United States
- University of Rochester Medical Center/ Golisano Children'S Hospital
Rochester, New York, United States
- New York Medical College, Maria Fareri Children'S Hospital
Valhalla, New York, United States
- Duke University
Durham, North Carolina, United States
- Cincinnati Children'S Hospital Medical Center
Cincinnati, Ohio, United States
- University Hospitals-Rainbow Babies and Children'S Hospital
Cleveland, Ohio, United States
- Nationwide Children'S Hospital
Columbus, Ohio, United States
- Oregon Health and Science University
Portland, Oregon, United States
- the Children'S Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
- Children'S Hospital of Pittsburgh of Upmc
Pittsburgh, Pennsylvania, United States
- St. Jude Children'S Research Hospital
Memphis, Tennessee, United States
- University of Texas Southwestern Medical Center/children'S of Dallas
Dallas, Texas, United States
- Texas Children'S Hospital
Houston, Texas, United States
- Methodist Children'S Hospital of South Texas/texas Transplant Institute
San Antonio, Texas, United States
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 2 Sept 2010
- Primary completion
- 30 Sept 2028
- Completion
- 30 Sept 2028
- Last update posted
- 10 Nov 2020
- Registered enrollment
- 690
- Registry id
- NCT01186913
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.