FindMyKOL
Clinical trialNCT01412047CompletedObservational

Paroxysmal Nocturnal Hemoglobinuria Human Anti-Human Antibodies Study

SponsorAlexion Pharmaceuticals, Inc.Enrollment75PNHParoxysmal Nocturnal Hemoglobinuria
View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

How does long term treatment with Soliris affect HAHA in PNH patients?

Investigators

The overall officials registered on this study. Names that resolve to a FindMyKOL profile link to it; the rest are shown as registered.

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

14 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Australia
  • Facility name not stated

    Melbourne, Australia

Belgium
  • Facility name not stated

    Brussels, Belgium

France
  • Facility name not stated

    Paris, France

Germany
  • Universitatsklinikum Essen

    Essen, Germany

  • Institut Fur Klinische Transfusionmedizin Und Immungenetick

    Ulm, Germany

Ireland
  • Facility name not stated

    Dublin, Ireland

Italy
  • Azienda Ospediliera Universitatia Careggi

    Florence, Italy

  • Universita Degli Studi Di Napoli

    Naples, Italy

Netherlands
  • Facility name not stated

    Nijmegen, Netherlands

Switzerland
  • Facility name not stated

    Basel, Switzerland

United Kingdom
  • Facility name not stated

    London, United Kingdom

United States
  • University Park Hematology Oncology

    Englewood, Colorado, United States

  • Cleveland Clinic Florida

    Weston, Florida, United States

  • Maine Cancer Center of Medicine

    Scarborough, Maine, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
31 Mar 2012
Primary completion
30 Jun 2013
Completion
30 Jun 2013
Last update posted
18 Oct 2017
Registered enrollment
75
Registry id
NCT01412047

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 11 Nov 2026. Registry facts are shown as registered by the study sponsor; FindMyKOL does not interpret them.