G551D Observational Study- Expanded to Additional Genotypes and Extended for Long Therm Follow up (GOAL-e2)
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Steven M Rowe, MD
University of Alabama at Birmingham
Principal Investigator
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
36 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- University of Alabama at Birmingham
Birmingham, Alabama, United States
- Phoenix Childrens Hospital
Phoenix, Arizona, United States
- University of Arkansas for Medical Sciences
Little Rock, Arkansas, United States
- Stanford University Medical Center
Palo Alto, California, United States
- the Children'S Hospital Colarado
Aurora, Colorado, United States
- National Jewish Health
Denver, Colorado, United States
- Yale
New Haven, Connecticut, United States
- University of Chicago
Chicago, Illinois, United States
- Indianapolis University
Indianapolis, Indiana, United States
- Riley Hospital for Children Indiana University Medical Center
Indianapolis, Indiana, United States
- University of Kentucky
Lexington, Kentucky, United States
- the Johns Hopkins University
Baltimore, Maryland, United States
- Children'S Hospital Boston
Boston, Massachusetts, United States
- Massachusetts General Hospital
Boston, Massachusetts, United States
- University of Michigan
Ann Arbor, Michigan, United States
- Children'S Hospital of Michigan
Detroit, Michigan, United States
- Grand Rapids Cf Center
Grand Rapids, Michigan, United States
- University of Minnesota
Minneapolis, Minnesota, United States
- the Children'S Mercy Hospital--University of Missouri at Kansas City
Kansas City, Missouri, United States
- Dartmouth Hitchcock Clinic-Lebanon
Lebanon, New Hampshire, United States
- Women and Children'S Hospital of Buffalo
Buffalo, New York, United States
- University of North Carolina at Chapel Hill
Chapel Hill, North Carolina, United States
- Cincinnati Children'S Hospital Medical Center
Cincinnati, Ohio, United States
- University Hospitals Case Medical Center/rainbow Babies and Children'S Hospital
Cleveland, Ohio, United States
- Nation Wide Childrens Hospital
Columbus, Ohio, United States
- Toledo Children'S Hospital
Toledo, Ohio, United States
- Oregon Health Sciences University
Portland, Oregon, United States
- Children'S Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
- Children'S Hospital of Pittsburgh of Upmc- University of Pittsburgh
Pittsburgh, Pennsylvania, United States
- Medical University of South Carolina
Charleston, South Carolina, United States
- Vanderbilt Children'S Hospital Vanderbilt University Medical Center
Nashville, Tennessee, United States
- University of Texas Southwestern/children'S Medical Center of Dallas
Dallas, Texas, United States
- Baylor College of Medicine/texas Children'S Hospital
Houston, Texas, United States
- Intermountain Cystic Fibrosis Center University of Utah Health Sciences Center
Salt Lake City, Utah, United States
- West Virginia University Cf Medical Center
Morgantown, West Virginia, United States
- Froedtert & Medical College of Wisconsin
Milwaukee, Wisconsin, United States
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 31 Jan 2014
- Primary completion
- 30 Jun 2021
- Completion
- 30 Jun 2021
- Last update posted
- 30 Jun 2021
- Registered enrollment
- 120
- Registry id
- NCT01521338
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.