Clinical Diagnosis of Acute Porphyria
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Bruce Wang, M.D.
University of California at San Francisco
Study Chair - Herbert L. Bonkovsky, M.D.
Carolinas Medical Center and HealthCare System
Principal Investigator - James P. Kushner, M.D.
University of Utah
Principal Investigator - Joseph R. Bloomer, M.D.
University of Alabama at Birmingham
Principal Investigator - Karl E. Anderson, M.D.
University of Texas
Principal Investigator - Robert J. Desnick, Ph.D., M.D.
Icahn School of Medicine at Mount Sinai
Principal Investigator
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
6 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- Uab Porphyria Center, University of Alabama at Birmingham
Birmingham, Alabama, United States
- Ucsf Porphyria Center, University of California at San Francisco
San Francisco, California, United States
- Mount Sinai Porphyria Comprehensive Diagnostic & Treatment Center, Mount Sinai School of Medicine
New York, New York, United States
- Wake Forest University School of Medicine
Winston-Salem, North Carolina, United States
- Utmb Porphyria Center, University of Texas Medical Branch
Galveston, Texas, United States
- Porphyria Center, University of Utah
Salt Lake City, Utah, United States
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 31 Dec 2011
- Primary completion
- 31 Dec 2018
- Completion
- 31 Dec 2018
- Last update posted
- 28 Sept 2021
- Registered enrollment
- 148
- Registry id
- NCT01568554
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.