Clinical trialNCT02190929CompletedObservational

Educational Needs of Patients With Systemic Vasculitis

SponsorUniversity of South FloridaEnrollment386Behcet's DiseaseChurg-Strauss SyndromeGiant Cell ArteritisHenoch-Schoenlein PurpuraMicroscopic PolyangiitisPolyarteritis Nodosa+3 more conditions

View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

A cross-sectional study design and online questionnaire was used to assess the informational needs of patients with several different types of systemic vasculitis. Patients were recruited from within the Vasculitis Clinical Research Consortium (VCRC) online Patient Contact Registry1. Survey responses from participants in the VCRC Patient Contact Registry were compared to responses from a similar survey recently administered to patients within a United Kingdom (UK) based vasculitis support group (Vasculitis UK).

clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

Amanda M. Terry, MA
University of South Florida College of Medicine
Study Chair
clinicaltrials.gov ↗
Janice Mooney, M.Sc.
University of East Anglia
Study Chair
clinicaltrials.gov ↗
Peter A. Merkel, MD, MPH
University of Pennsylvania
Study ChairKOL profile →
clinicaltrials.gov ↗
Peter C. Grayson, MD
Boston University
Study ChairKOL profile →
clinicaltrials.gov ↗
Richard A Watts, DM
University of East Anglia
Study Chair
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

1 registered facility, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States

University of South Florida Data Management Coordinating Center
Tampa, Florida, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 31 Mar 2012
Primary completion: 28 Feb 2014
Completion: 28 Feb 2014
Last update posted: 15 Jul 2014
Registered enrollment: 386
Registry id: NCT02190929

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.