Natural History Study of Factor IX Treatment and Complications
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Alice J. Cohen, MD
Newark Beth Israel Medical Center, Newark, NJ
Principal Investigator - Amy D Shapiro, MD
Indiana Hemophilia &Thrombosis Center, Inc.
Study Director - Catherine McGuinn, MD
Weill Cornell Medical College, New York, NY
Principal Investigator - Christine Kempton, MD
Emory University, Atlanta, Georgia
Principal Investigator - Christine Knoll, MD
Phoenix Children's Hospital, Phoenix, AZ
Principal Investigator - Christoph Bidlingmaier, MD
Dr. v Hauner Children's University Hospital, Munich, Germany
Principal Investigator - Cristina Tarango, MD
Cincinnati Children's Hospital Medical Center, Cincinnati, OH US
Principal Investigator - Erik Berntorp, MD, PhD
Skåne University Hospital, Malmö
Study Director - Eva Funding, MD
National University Hospital Copenhagen, Copenhagen, Denmark
Principal Investigator - Jan Astermark, MD, PhD
Skåne University Hospital, Malmö
Study Director - Johannes Oldenburg, MD, Ph.D
University Clinic, Bonn
Principal Investigator - Katharina Holstein, MD
University Medical Centre Hamburg-Eppendorf, Hamburg, Germany
Principal Investigator - Manuela Carvalho, MD
Centro Hospitalar de São João, Porto, Portugal
Principal Investigator - Margaret Ragni, MD
University of Pittsburgh and Hemophilia Center of Western Pennsylvania, Pittburgh, PA US
Principal Investigator - Michael D Tarantino, MD
Bleeding and Clotting Disorders Institute, Peoria, IL US
Principal Investigator - Michelle Witkop, DNP, FNP-BC
Munson Medical Center, Traverse City, MI, US
Principal Investigator - Munira Borhany, MD
National Institute of Blood Disease and Bone Marrow Transplantation, Karachi, Pakistan
Principal Investigator - Philip Kuriakose, MD
Henry Ford Health System, Detroit, MI
Principal Investigator - Raina Liesner, MD
Great Ormond Street Hospital for Children, London, UK
Principal Investigator - Roshni Kulkarni, MD
Michigan State University, East Lansing, MI
Principal Investigator - Stacy Croteau, MD
Boston Hemophilia Center, Boston, MA
Principal Investigator - Suchitra Acharya, MD
Cohen Children's Medical Center, New Hyde Park, NY
Principal Investigator - Susan Kearney, MD
Children's Hospitals and Clinics of Minnesota, Minneapolis, MN
Principal Investigator - Ulrike Reiss, MD
St. Jude Children's Research Hospital, Memphis, TN US
Principal Investigator - Yasmina Abajas, MD
University of North Carolina Hemophilia Treatment Center, Chapel Hill, NC
Principal Investigator
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
1 registered facility, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- Indiana Hemophilia & Thrombosis Center
Indianapolis, Indiana, United States
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 31 Jul 2015
- Primary completion
- 30 Jun 2019
- Completion
- 31 Dec 2021
- Last update posted
- 25 May 2021
- Registered enrollment
- 550
- Registry id
- NCT02502409
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.