Clinical trialNCT02560883RecruitingObservational

Hairy Cell Leukemia Patient Data Registry

SponsorOhio State University Comprehensive Cancer CenterEnrollment5,000Leukemia, Other

View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

The overall objective is to develop a clinical data registry that can be used to facilitate research with the ultimate goal of reducing the morbidity and/or mortality and improving the quality of life of patients diagnosed or living with hairy cell leukemia. With approximately 1,000 new cases of this rare disease identified in the US each year, HCL represents 2% of all cases of leukemia in adults. Considering the rarity of this chronic leukemia, the Hairy Cell Leukemia Foundation (HCLF), in partnership with investigators from its Centers of Excellence, seeks to develop a registry to help researchers identify new trends in outcomes, recognize the most effective treatments, discover previously unknown complications of the disease, and design clinical trials for new therapies.

clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

Michael Grever, MD
The Ohio State University Comprehensive Cancer Center
Principal Investigator
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

8 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Australia

Peter Maccallum Cancer Center
Melbourne, Victoria, Australia
Philip Thompson, MBBS
Recruiting

Canada

Bc Cancer, Part of the Provincial Health Services Authority
Vancouver, Britsh Columbia, Canada
Recruiting
Cancer Care Manitoba
Winnipeg, Manitoba, Canada
Banerji Banerji, MD
Recruiting

United States

University of Miami/soffer Clinical Research Center
Miami, Florida, United States
Justin Taylor, M.D.
Recruiting
Mount Sinai Medical Center of Florida
Miami Beach, Florida, United States
Recruiting
Mayo Clinic
Rochester, Minnesota, United States
Sameer Parikh, MD
Recruiting
University of Rochester /wilmot Cancer Institute
Rochester, New York, United States
Clive Zent, MD
Recruiting
Ohio State University Comprehensive Cancer Center
Columbus, Ohio, United States
Michael Grever, MD
Recruiting

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 2 Jan 2013
Primary completion: 31 Dec 2030
Completion: 31 Dec 2030
Last update posted: 2 Jul 2026
Registered enrollment: 5,000
Registry id: NCT02560883

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.