Understanding Clinical Phenotype and Collecting Biomarker Samples in C9ORF72 ALS
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Timothy M Miller, MD, PhD
Washington University School of Medicine
Principal Investigator
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
8 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- Umc Utrecht
Utrecht, Netherlands
- Cedars Sinai Medical Center
Los Angeles, California, United States
- Johns Hopkins
Baltimore, Maryland, United States
- University of Massachusetts
Amherst, Massachusetts, United States
- Massachusetts General Hospital
Boston, Massachusetts, United States
- Washington University in St. Louis
St Louis, Missouri, United States
- Columbia University Medical Center
New York, New York, United States
- Sentara Health Care / Sentara Neurology Specialists
Virginia Beach, Virginia, United States
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 28 Feb 2015
- Primary completion
- 31 Dec 2017
- Completion
- 2 Oct 2018
- Last update posted
- 8 Jul 2021
- Registered enrollment
- 128
- Registry id
- NCT02686268
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.