findmyKOL
Clinical trialNCT02995538RecruitingObservational

Neurogenetics Patient Registry

SponsorUniversity of PittsburghEnrollment1,000Neurogenetic Disorders
View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

1 registered facility, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States
  • Children'S Hospital of Pittsburgh of Upmc

    Pittsburgh, Pennsylvania, United States

    Aleksandar Rajkovic, MD, PhDAlexander Yatsenko, MD, PhDAndrew McCarty, CGCDeepa Soundara Rajan, MDDietrich Stephan, PhDGerard Vockley, MD, PhDIra Bergman, MD, PhDSvetlana Yatsenko, MDUdai Pandey, PhD
    Recruiting

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
30 Jan 2017
Primary completion
31 Jan 2027
Completion
31 Jan 2028
Last update posted
6 Mar 2026
Registered enrollment
1,000
Registry id
NCT02995538

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.