Clinical trialNCT03489278RecruitingObservational

Clinical Procedures to Support Research in ALS

SponsorUniversity of MiamiEnrollment1,200ALS-Frontotemporal DementiaAmyotrophic Lateral SclerosisPrimary Lateral SclerosisProgressive Muscular Atrophy

View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

Michael Benatar, MBChB, MS, DPhil
University of Miami
Principal InvestigatorKOL profile →
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

11 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States

University of California, Irvine
Irvine, California, United States
Namita Goyal, MD
Recruiting
Stanford University
Palo Alto, California, United States
Mawell Greene, MD
Recruiting
California Pacific Medical Center
San Francisco, California, United States
Jonathan Katz, MD
Recruiting
University of Miami
Miami, Florida, United States
Michael Benatar, MBChB, MS, DPhil →
Recruiting
University of Kansas Medical Center
Kansas City, Kansas, United States
Jeffrey Statland, MD
Recruiting
Hennepin County Medical Center
Minneapolis, Minnesota, United States
Samuel Maiser, MD
Recruiting
Columbia University
New York, New York, United States
Active, not recruiting
Duke University
Durham, North Carolina, United States
Xiaoyan Li
Recruiting
Wake Forest University
Winston-Salem, North Carolina, United States
James Caress, MD
Recruiting
Providence Health & Services
Portland, Oregon, United States
Nicholas Olney, MD
Recruiting
University of Texas San Antonio Health Science Center
San Antonio, Texas, United States
Carlayne Jackson, MD
Recruiting

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 15 Feb 2018
Primary completion: 30 Jun 2032
Completion: 30 Jun 2034
Last update posted: 15 Jun 2026
Registered enrollment: 1,200
Registry id: NCT03489278

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.