ATHN 8: Previously Untreated Patients (PUPs) Matter Study
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Courtney Thornburg, MD, MS
University of California San Diego, Rady Children's Hospital San Diego
Principal Investigator - Marijke van den Berg, MD, PhD
Versiti Blood Health
Principal Investigator - Shannon Carpenter, MD, MS
Children's Mercy Hospital Kansas City
Principal Investigator
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
27 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- Arizona Hemophilia and Thrombosis Center at Phoenix Children'S Hospital
Phoenix, Arizona, United States
- Valley Children'S Hospital
Madera, California, United States
- Rady Children'S Hospital San Diego
San Diego, California, United States
- Ucsf Pediatric Hemophilia Treatment Center at Mission Bay
San Francisco, California, United States
- University of Colorado Denver Hemophilia and Thrombosis Center
Aurora, Colorado, United States
- Connecticut Bleeding and Clotting Disorders Center
Farmington, Connecticut, United States
- Children'S National Medical Center
Washington D.C., District of Columbia, United States
- Johns Hopkins All Children'S Hospital
St. Petersburg, Florida, United States
- Children'S Healthcare of Atlanta/emory
Atlanta, Georgia, United States
- Augusta University Hemophilia Treatment Center
Augusta, Georgia, United States
- Rush University Medical Center
Chicago, Illinois, United States
- Indiana Hemophilia and Thrombosis Center (ihtc)
Indianapolis, Indiana, United States
- Kansas City Regional Hemophilia Center
Kansas City, Kansas, United States
- Maine Hemophilia and Thrombosis Center
Scarborough, Maine, United States
- Boston Hemophilia Center at Children'S Hospital of Boston
Boston, Massachusetts, United States
- University of Michigan Hemophilia and Coagulation Disorders
Ann Arbor, Michigan, United States
- Mayo Comprehensive Hemophilia Center
Rochester, Minnesota, United States
- Cincinnati Children'S Hospital Medical Center, Hemophilia & Thrombosis Center
Cincinnati, Ohio, United States
- Uhhs Cleveland
Cleveland, Ohio, United States
- Northwest Ohio Hemophilia Treatment Center at the Toledo Hospital
Toledo, Ohio, United States
- Oklahoma Center for Bleeding and Clotting Disorders
Oklahoma City, Oklahoma, United States
- Oregon Health and Science University
Portland, Oregon, United States
- St Jude Children'S Research Hospital
Memphis, Tennessee, United States
- Vanderbilt University Medical Center
Nashville, Tennessee, United States
- Utah Center for Bleeding & Clotting Disorders at Primary Children'S Hospital
Salt Lake City, Utah, United States
- Hemophilia Outreach Center
Green Bay, Wisconsin, United States
- Blood Center of Wisconsin
Milwaukee, Wisconsin, United States
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 3 Oct 2018
- Primary completion
- 26 Jan 2022
- Completion
- 31 Dec 2022
- Last update posted
- 1 Feb 2023
- Registered enrollment
- 237
- Registry id
- NCT03818529
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.