findmyKOL
Clinical trialNCT03853486Active, not recruitingObservational

ATHN 9: Severe VWD Natural History Study

SponsorAmerican Thrombosis and Hemostasis NetworkEnrollment108Von Willebrand Diseases
View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

  • Angela Weyand, MD

    University of Michigan Hemophilia and Coagulation Disorders

    Principal Investigator
  • Robert Sidonio, MD

    Emory University / Children's Healthcare of Atlanta

    Principal Investigator

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

22 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States
  • Center for Inherited Blood Disorders

    Orange, California, United States

  • University of Colorado Denver Hemophilia and Thrombosis Center

    Aurora, Colorado, United States

  • Connecticut Bleeding and Clotting Disorders Center

    Farmington, Connecticut, United States

  • University of Florida Hemophilia Treatment Center

    Gainesville, Florida, United States

  • Children'S Healthcare of Atlanta/emory

    Atlanta, Georgia, United States

  • Bleeding and Clotting Disorders Institute

    Peoria, Illinois, United States

  • Indiana Hemophilia and Thrombosis Center (ihtc)

    Indianapolis, Indiana, United States

  • Louisiana Center for Bleeding and Clotting Disorders

    New Orleans, Louisiana, United States

  • University of Michigan Hemophilia and Coagulation Disorders

    Ann Arbor, Michigan, United States

  • Children'S Hospital of Michigan Hemostasis and Thrombosis Center

    Detroit, Michigan, United States

  • Michigan State University Center for Bleeding and Clotting Disorders

    East Lansing, Michigan, United States

  • Mayo Comprehensive Hemophilia Center

    Rochester, Minnesota, United States

  • Washington University Center for Treatment of Bleeding and Blood Clotting Disorders

    St Louis, Missouri, United States

  • Nationwide Children'S Hospital Columbus

    Columbus, Ohio, United States

  • Oregon Health

    Portland, Oregon, United States

  • Pennsylvania Comprehensive Hemophilia and Thrombophilia Program / Hospital of the University of Pennsylvania

    Philadelphia, Pennsylvania, United States

  • Hemophilia Center of Western Pennsylvania

    Pittsburgh, Pennsylvania, United States

  • Rhode Island Hemostasis & Thrombosis Center

    Providence, Rhode Island, United States

  • University of Tennessee, University Clinical Health (memphis)

    Memphis, Tennessee, United States

  • Vanderbilt University Medical Center

    Nashville, Tennessee, United States

  • Hemophilia Outreach Center

    Green Bay, Wisconsin, United States

  • Versiti - Blood Center of Wisconsin

    Milwaukee, Wisconsin, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
18 Jun 2019
Primary completion
31 Dec 2025
Completion
30 Jul 2026
Last update posted
12 Mar 2025
Registered enrollment
108
Registry id
NCT03853486

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.