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Clinical trialNCT03920774RecruitingObservational

The Natural History of Familial Dysautonomia

SponsorNYU Langone HealthEnrollment400Familial Dysautonomia (Riley-Day Syndrome)Hereditary Sensory and Autonomic NeuropathiesHereditary Sensory and Autonomic Neuropathy 3
View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

2 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Israel
  • Sheba Medical Center - Safra Children'S Hospital

    Tel Litwinsky, Ramat Gan, Israel

    Recruiting
United States
  • Dysautonomia Center - School of Medicine -Nyu Langone Medical Center

    New York, New York, United States

    Horacio Kaufmann, MD
    Recruiting

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
22 Feb 2017
Primary completion
21 Feb 2027
Completion
31 Dec 2028
Last update posted
10 Nov 2025
Registered enrollment
400
Registry id
NCT03920774
clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.