Defining Clinical Endpoints in Limb Girdle Muscular Dystrophy (LGMD)
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Nicholas Johnson, MD
Virginia Commonwealth University
Principal Investigator
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
10 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- John Walton Muscular Dystrophy Research Centre (newcastle Upon Tyne)
Newcastle, United Kingdom
- University of California Irvine
Irvine, California, United States
- the University of Colorado Anschutz Medical Campus
Aurora, Colorado, United States
- University of Iowa
Iowa City, Iowa, United States
- University of Kansas Medical Center
Kansas City, Kansas, United States
- Kennedy Krieger Institute
Baltimore, Maryland, United States
- University of Minnesota
Minneapolis, Minnesota, United States
- Washington University School of Medicine
St Louis, Missouri, United States
- Nationwide Children'S Hospital
Columbus, Ohio, United States
- Virginia Commonwealth University
Richmond, Virginia, United States
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 14 Jun 2019
- Primary completion
- 30 Jun 2025
- Completion
- 30 Jun 2025
- Last update posted
- 27 Feb 2026
- Registered enrollment
- 116
- Registry id
- NCT03981289
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.