Estab Biomarkers and Clinical Endpoints in Myotonic Dystrophy Type 1 (END-DM1)
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Charles Thornton, MD
University of Rochester
Principal Investigator - Nicholas Johnson, MD
Virginia Commonwealth University
Principal Investigator
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
17 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- Université de Sherbrooke
Québec, Canada
Active, not recruiting
- Friedrich Baur Institute, Ludwig-Maximilians-Universität München
München, Germany
Benedikt Schoser, FEANRecruiting
- Centro Clinico Nemo
Milan, Italy
Completed
- Radboud University Medical Center
Nijmegen, Netherlands
Baziel van Engelen, MDRecruiting
- University of Auckland
Auckland, New Zealand
Richard RoxburghRecruiting
- St. George'S, University of London
London, United Kingdom
Emma MatthewsRecruiting - University College London
London, United Kingdom
Chris TurnerRecruiting
- University of California, San Diego
La Jolla, California, United States
Chamindra Laverty, MDRecruiting - University of California, Los Angeles
Los Angeles, California, United States
Perry Shieh, MD, PhDRecruiting - University of Colorado - Denver
Denver, Colorado, United States
Matthew Wicklund, MDRecruiting - University of Florida
Gainesville, Florida, United States
Sankarsubramoney Subramony, MDRecruiting - University of Iowa
Iowa City, Iowa, United States
Andrea Swenson, MDRecruiting - Kansas University Medical Center
Kansas City, Kansas, United States
Jeffrey Statland, MDRecruiting - University of Rochester
Rochester, New York, United States
Johanna Hamel, MDRecruiting - Ohio State University
Columbus, Ohio, United States
Bakri Elsheikh, MDRecruiting - Houston Methodist Neurological Institute
Houston, Texas, United States
Erika P. GreeneRecruiting - Virginia Commonwealth University
Richmond, Virginia, United States
Nicholas Johnson, MDRecruiting
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 1 Jan 2019
- Primary completion
- 1 Oct 2026
- Completion
- 1 Dec 2026
- Last update posted
- 10 Jun 2026
- Registered enrollment
- 700
- Registry id
- NCT03981575
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.