Clinical trialNCT04181138RecruitingObservational

Primary Sclerosing Cholangitis in Children

SponsorArbor Research Collaborative for HealthEnrollment1,000Cholangitis, SclerosingLiver DiseasesPrimary Sclerosing Cholangitis

View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

Cara Mack, MD
Medical College of Wisconsin-Milwaukee
Study Chair
clinicaltrials.gov ↗
Ed Doo, MD
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Study Director
clinicaltrials.gov ↗
John Magee, MD
University of Michigan
Principal Investigator
clinicaltrials.gov ↗
Katrina Loh, MD
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Study Director
clinicaltrials.gov ↗
Lisa Henn, PhD
Arbor Research Collaborative for Health
Principal Investigator
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

12 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Canada

the Hospital for Sick Children
Toronto, Ontario, Canada
Completed

United States

Children'S Hospital of Los Angeles
Los Angeles, California, United States
Rohit Kohli, MD
Recruiting
Children'S Hospital Colorado
Aurora, Colorado, United States
Amy Feldman, MDDania Brigham, MDMichael Narkewicz, MDRon Sokol, MDShikha Sundaram, MD
Recruiting
Children'S Healthcare of Atlanta
Atlanta, Georgia, United States
Nitika Gupta, MD
Recruiting
Ann & Robert H Lurie Children'S Hospital
Chicago, Illinois, United States
Estella Alonso, MD
Recruiting
Riley Hospital for Children
Indianapolis, Indiana, United States
Completed
Cincinnati Children'S Hospital Medical
Cincinnati, Ohio, United States
Alex Miethke, MD
Recruiting
the Children'S Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
Kathleen Loomes, MD
Recruiting
Upmc Children'S Hospital of Pittsburgh
Pittsburgh, Pennsylvania, United States
Completed
Texas Children'S Hospital (baylor College of Medicine)
Houston, Texas, United States
Mary Elizabeth Tessier, MD
Recruiting
the University of Utah
Salt Lake City, Utah, United States
Kyle Jensen, MDLinda Book, MDMark Deneau, MDStephen Guthery, MD
Recruiting
Seattle Children'S Hospital
Seattle, Washington, United States
Pamela Valentino, MD
Recruiting

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 30 Dec 2021
Primary completion: 31 May 2029
Completion: 31 May 2029
Last update posted: 4 Jun 2026
Registered enrollment: 1,000
Registry id: NCT04181138

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.