Clinical trialNCT04398628RecruitingObservational

ATHN Transcends: A Natural History Study of Non-Neoplastic Hematologic Disorders

SponsorAmerican Thrombosis and Hemostasis NetworkEnrollment3,000Bleeding DisorderConnective Tissue DisorderFactor IX DeficiencyFactor VIII DeficiencyHematologic DisorderHemophilia+7 more conditions

View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

Michael Recht, MD, PhD, MBA
Yale University School of Medicine & National Bleeding Disorders Foundation
Principal Investigator
clinicaltrials.gov ↗
Tammuella Chrisentery-Singleton, MD
ATHN, Ochsner Clinic Foundation
Principal Investigator
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

71 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States

Arizona Hemophilia and Thrombosis Treatment Center at Phoenix Children'S Hospital
Phoenix, Arizona, United States
Shanna White, MD
Recruiting
Arkansas Center for Bleeding Disorders
Little Rock, Arkansas, United States
Shelley Crary, MD
Recruiting
Childrens Hospital Los Angeles
Los Angeles, California, United States
Guy Young, MD
Recruiting
Orthopaedic Institute for Children Htc
Los Angeles, California, United States
Doris Quon, MD
Recruiting
Ucsf Benioff Children'S Hospital Oakland
Oakland, California, United States
Alison Matsunaga, MD
Recruiting
University of California at Davis Hemophilia Treatment Center
Sacramento, California, United States
Kim Schafer, RN, MSN, FNP
Recruiting
Loma Linda Hemoglobinopathy and Inherited Bleeding Disorder Program
San Bernardino, California, United States
Akshat Jain, MD
Recruiting
Hemophilia & Thrombosis Treatment Center at Uc San Diego Health
San Diego, California, United States
Annette Von Drygalski, MD
Recruiting
Rady Children'S Hospital San Diego
San Diego, California, United States
Julie Jaffray, MD
Recruiting
University of California, San Francisco Hemophilia & Thrombosis Center
San Francisco, California, United States
Andrew Leavitt, MD
Recruiting
Connecticut Children'S Medical Center
Hartford, Connecticut, United States
Laura McKay, MD
Recruiting
Yale Hemophilia Treatment Center
New Haven, Connecticut, United States
Stephanie Prozora, MD
Recruiting
Delaware Hemophilia Treatment Center
Wilmington, Delaware, United States
Corrina Schultz, MD
Recruiting
Children'S National Hemophilia Center
Washington D.C., District of Columbia, United States
Michael Guerrera, MD
Recruiting
Georgetown University
Washington D.C., District of Columbia, United States
Craig Kessler, MD
Recruiting
University of Florida Hemophilia Treatment Center
Gainesville, Florida, United States
Tung Wynn, MD
Recruiting
University of Miami Comprehensive Hemophilia Treatment Center
Miami, Florida, United States
Fernando Corrales-Medina, MD
Recruiting
Arnold Palmer Hospital for Children - the Haley Center for Children'S Cancer and Blood Disorders
Orlando, Florida, United States
Shveta Gupta, MD
Not, yet, recruiting
Johns Hopkins All Children'S Hospital
St. Petersburg, Florida, United States
Irmel Ayala, MD
Recruiting
St. Joseph'S Hospital Center for Bleeding & Clotting Disorders
Tampa, Florida, United States
Erin Cockrell, MD
Recruiting
Comprehensive Bleeding Disorders Center at Emory University and Children'S Healthcare of Atlanta
Atlanta, Georgia, United States
Christine Kempton, MD
Recruiting
Emory/children'S Health Care of Atlanta
Atlanta, Georgia, United States
Robert Sidonio, Jr, MD
Recruiting
Memorial Health University Medical Center
Savannah, Georgia, United States
James Yarnall, MD, MPH
Recruiting
Rush University Medical Center
Chicago, Illinois, United States
Mindy Simpson, MD
Recruiting
Bleeding and Clotting Disorders Institute
Peoria, Illinois, United States
Jonathan Roberts, MD
Recruiting
Indiana Hemophilia and Thrombosis Center
Indianapolis, Indiana, United States
Amy Shapiro, MD
Recruiting
Iowa Hemophilia and Thrombosis Center
Iowa City, Iowa, United States
Janice Staber, MD
Recruiting
Louisiana Center for Bleeding and Clotting Disorders, Tulane University
New Orleans, Louisiana, United States
Maissaa Janbain, MD
Recruiting
Maine Hemophilia and Thrombosis Center
Scarborough, Maine, United States
Eric Larsen, MD
Recruiting
Johns Hopkins University Hemophilia Treatment Center
Baltimore, Maryland, United States
Jennifer Keates-Baleeiro, MD
Recruiting
Massachusetts General Hospital Comprehensive Hemophilia and Thrombosis Treatment Center
Boston, Massachusetts, United States
Eric Grabowski, MD
Not, yet, recruiting
Central Michigan Children'S Hospital of Michigan
Detroit, Michigan, United States
Madhvi Rajpurkar, MD
Recruiting
Henry Ford Health System Bleeding and Thrombosis Treatment Center
Detroit, Michigan, United States
Philip Kuriakose, MD
Recruiting
Mayo Comprehensive Hemophilia Center
Rochester, Minnesota, United States
Meera Sridharah, MD
Recruiting
Children'S Mercy Hospital - Kansas City
Kansas City, Missouri, United States
Shannon Carpenter, MD
Recruiting
the John Bouhasin Center for Children With Bleeding Disorders
St Louis, Missouri, United States
John Puetz, MD
Recruiting
Cure 4 the Kids Foundation
Las Vegas, Nevada, United States
Aimee Foord, MD
Recruiting
Hemostasis and Thrombosis Center of Nevada
Reno, Nevada, United States
Daisy Cortes, MD
Recruiting
Newark Beth Israel Medical Center - Hemophilia Center
Newark, New Jersey, United States
Alice Cohen, MD
Recruiting
University of New Mexico Ted R. Montoya Hemophilia & Thrombosis Program
Albuquerque, New Mexico, United States
Shirley Abraham, MD
Recruiting

31 more sites on the registry record.ClinicalTrials.gov ↗

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 30 Sept 2020
Primary completion: 30 Jun 2035
Completion: 31 Dec 2035
Last update posted: 12 Jan 2026
Registered enrollment: 3,000
Registry id: NCT04398628

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.