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Clinical trialNCT04516499Active, not recruitingObservational

Neurofilament Surveillance Project (NSP)

SponsorThe Bluefield Project to Cure Frontotemporal DementiaEnrollment342FTDFTD-GRNFTLDFrontotemporal DementiaFrontotemporal Lobar Degeneration
View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

This is a biomarker study designed to collect and analyze blood specimens from individuals carrying known familial frontotemporal lobar degeneration (f-FTLD) mutations compared to a control group of individuals without known f-FTLD mutations. The NSP is an ancillary study to the ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration" (ALLFTD) study, NCT04363684. More information can be found at https://www.allftd.org/.
clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

8 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States
  • University of California, San Francisco

    San Francisco, California, United States

  • Mayo Clinic Florida

    Jacksonville, Florida, United States

  • Johns Hopkins University School of Medicine

    Baltimore, Maryland, United States

  • Massachusetts General Hospital

    Charlestown, Massachusetts, United States

  • Mayo Clinic

    Rochester, Minnesota, United States

  • Washington University in St. Louis

    St Louis, Missouri, United States

  • Columbia University

    New York, New York, United States

  • University of Pennsylvania

    Philadelphia, Pennsylvania, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
2 Sept 2020
Primary completion
28 Feb 2027
Completion
28 Feb 2027
Last update posted
18 Jun 2026
Registered enrollment
342
Registry id
NCT04516499
clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.