Clinical trialNCT04687358Active, not recruitingObservational

REgiStry Of the NAtural History of recurreNt periCarditis in pEdiatric and Adult Patients

SponsorKiniksa Pharmaceuticals International, plcEnrollment500Recurrent Pericarditis

View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

The registry will focus on furthering the understanding of the natural history of recurrent pericarditis (RP), as well as document RP-related clinical, health-related quality of life (HRQoL), and economic burden and will assist the medical community to refine or develop data-driven recommendations for clinical management of RP patients to optimize clinical outcomes. It also aims to generate data in support of the impact of rilonacept on clinical outcomes in a real-world population.

clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a FindMyKOL profile link to it; the rest are shown as registered.

John F Paolini, MD, PhD
Kiniksa Pharmaceuticals Corp
Study Director
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

29 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States

Alaska Heart & Vascular Institute
Anchorage, Alaska, United States
Pima Heart and Vascular
Tucson, Arizona, United States
University of California San Diego Medical Center
La Jolla, California, United States
Cedars-Sinai Medical Center
Los Angeles, California, United States
Scripps Health
San Diego, California, United States
Northwestern University
Chicago, Illinois, United States
Midwest Cardiovascular Research Foundation
Davenport, Iowa, United States
Johns Hopkins University
Baltimore, Maryland, United States
Brigham and Women'S Hospital
Boston, Massachusetts, United States
Massachusetts General Hospital
Boston, Massachusetts, United States
Detroit Medical Center
Detroit, Michigan, United States
Minneapolis Heart Institute Foundation
Minneapolis, Minnesota, United States
Mayo Clinic - Ppds
Rochester, Minnesota, United States
Barnes-Jewish Hospital/washington University
St Louis, Missouri, United States
University of Nebraska
Omaha, Nebraska, United States
Tkl Research Inc.
Fair Lawn, New Jersey, United States
Nyu Langone Health
New York, New York, United States
Northwell Health - Lenox Hill Hospital
New York, New York, United States
the Linder Research Center at the Christ Hospital
Cincinnati, Ohio, United States
Cleveland Clinic
Cleveland, Ohio, United States
Legacy Medical Group, Cardiology
Portland, Oregon, United States
Carnegie Mellon University, Allegheny Health Network, Allegheny General Hospital
Pittsburgh, Pennsylvania, United States
University of Texas Southwestern Medical Center
Dallas, Texas, United States
Houston Methodist Hospital
Houston, Texas, United States
University of Utah
Salt Lake City, Utah, United States
University of Vermont Medical Center
Burlington, Vermont, United States
Virginia Commonwealth University
Richmond, Virginia, United States
Seattle Children'S Hospital
Seattle, Washington, United States
Swedish Medical Center - Cherry Hill
Seattle, Washington, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 16 Mar 2021
Primary completion: 31 Mar 2029
Completion: 31 Mar 2029
Last update posted: 17 Feb 2026
Registered enrollment: 500
Registry id: NCT04687358

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 4 Nov 2026. Registry facts are shown as registered by the study sponsor; FindMyKOL does not interpret them.