Clinical trialNCT04972604RecruitingObservational

CureDuchenne Link®: A Resource for Research

SponsorCureDuchenneEnrollment5,000Becker Muscular DystrophyDuchenne Muscular Dystrophy

View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

Debra Miller
CureDuchenne
Principal Investigator
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

10 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States

Arkansas Children'S Hospital
Little Rock, Arkansas, United States
Recruiting
Cureduchenne
Newport Beach, California, United States
Debra Miller
Recruiting
Children'S Hospital of Orange County
Orange, California, United States
Amanda Fernandez, MD
Recruiting
Rare Disease Research
Atlanta, Georgia, United States
Han Phan, MD
Recruiting
University of Iowa
Iowa City, Iowa, United States
Recruiting
Kansas University Clinical Research Center
Fairway, Kansas, United States
Jeffrey Statland, MD
Recruiting
Corewell Health
Grand Rapids, Michigan, United States
Jena Krueger, MD
Recruiting
Rare Disease Research Center
Hillsborough, North Carolina, United States
Edward Smith
Recruiting
Penn State Health
Hershey, Pennsylvania, United States
Ashutosh Kumar, MD
Recruiting
Neurology Rare Disease Center
Denton, Texas, United States
Diana Castro, MD
Recruiting

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 9 Jul 2021
Primary completion: 9 Jul 2031
Completion: 9 Jul 2031
Last update posted: 20 Aug 2024
Registered enrollment: 5,000
Registry id: NCT04972604

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.