Clinical trialNCT04994015RecruitingObservational

Parkinson's Foundation PD GENEration Genetic Registry

SponsorParkinson's FoundationEnrollment25,000Parkinson's Disease

View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

Development of a central repository for PD-related genomic data for future research.

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

James Beck, PhD
Parkinson's Foundation
Principal Investigator
clinicaltrials.gov ↗
Roy N Alcalay, MS, MD
Tel Aviv Sourasky Medical Center, Columbia University Irving Medical Center
Principal Investigator
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

56 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Canada

Toronto Western Hospital
Toronto, Ontario, Canada
Connie Marras, MD, PhD
Recruiting

Israel

Tel Aviv Sourasky Medical Center
Tel Aviv, Israel
Penina Ponger, MDRoy N Alcalay, MD
Recruiting

United States

University of Alabama Birmingham
Birmingham, Alabama, United States
Marissa Dean, MD
Recruiting
Md First Research
Chandler, Arizona, United States
Terminated
Barrow Neurological Institute
Phoenix, Arizona, United States
Holly Shill, MD
Recruiting
University of Arkansas
Fayetteville, Arkansas, United States
Rohit Dhall, MD
Recruiting
University of California San Diego (ucsd)
La Jolla, California, United States
Irene Litvan, MD
Recruiting
University of California Los Angeles
Los Angeles, California, United States
Jeff Bronstein, MD, PhD
Recruiting
University of California San Francisco (ucsf)
San Francisco, California, United States
Jill Ostrem, MD
Recruiting
University of Colorado Anschutz
Aurora, Colorado, United States
Jeanne Feuerstein, MD
Recruiting
Hartford Healthcare
Hartford, Connecticut, United States
Joy Antonelle DeMarcaida, MD
Recruiting
Aventura Neurology - Visionary Investigators Network
Aventura, Florida, United States
Julie Schwartzbard, MD
Recruiting
Parkinson'S Disease & Movement Disorder Center of Boca Raton
Boca Raton, Florida, United States
Stuart Isaacson, MD
Recruiting
University of Florida
Gainesville, Florida, United States
Irene Andonia Malaty, MD
Recruiting
University of Miami
Miami, Florida, United States
Carlos Singer, MDHenry Moore, MDIhtsham Haq, MD
Recruiting
Cleveland Clinic Weston
Weston, Florida, United States
Tarannum Khan, MD
Recruiting
Morehouse College
Atlanta, Georgia, United States
Chantale Branson, MD
Recruiting
the Queen'S Health System
Honolulu, Hawaii, United States
Fay Gao, MDMichiko Bruno, MD
Recruiting
Rush University
Chicago, Illinois, United States
Deborah Hall, MD
Recruiting
University of Chicago
Chicago, Illinois, United States
Tao Xie, MD, PhD
Recruiting
University of Illinois-Chicago
Chicago, Illinois, United States
Yasaman Kianirad, MD
Recruiting
Northwestern University
Evanston, Illinois, United States
Niccolo Mencacci, MD
Recruiting
Indiana University
Indianapolis, Indiana, United States
Elizabeth Zauber, MD
Recruiting
University of Iowa
Iowa City, Iowa, United States
Annie Killoran, MD, MS
Recruiting
University of Kansas
Lawrence, Kansas, United States
Rajesh Pahwa, MD
Recruiting
University of Kentucky
Lexington, Kentucky, United States
Tritia Yamasaki, MD, PhD
Recruiting
Louisiana State University
Shreveport, Louisiana, United States
Elizabeth Disbrow, PhD
Recruiting
Johns Hopkins
Baltimore, Maryland, United States
Kelly Mills, MD
Recruiting
University of Maryland
College Park, Maryland, United States
Recruiting
Bmc Community Hospital
Boston, Massachusetts, United States
Anna Hohler, MD
Recruiting
Beth Israel Deaconess Medical Center (bidmc)
Boston, Massachusetts, United States
David Simon, MD
Recruiting
Massachusetts General Hospital (mgh)
Boston, Massachusetts, United States
Anne-Marie Wills, MD
Recruiting
Struthers Parkinson'S Center - Healthpartners Park Nicollet
Golden Valley, Minnesota, United States
Martha Nance, MD
Recruiting
Rutgers University
New Brunswick, New Jersey, United States
Gian Pal
Recruiting
University of New Mexico
Albuquerque, New Mexico, United States
Amanda Deligtisch, MD
Recruiting
Columbia University
New York, New York, United States
Linn Katus, DO
Recruiting
Mount Sinai
New York, New York, United States
Susan Bressman, MD
Recruiting
New York University
New York, New York, United States
Giulietta Riboldi, MD, PhD
Recruiting
University of North Carolina - Chapel Hill
Chapel Hill, North Carolina, United States
Claudia Testa, MD, PhD
Recruiting
Atrium Health
Charlotte, North Carolina, United States
Nicholas Fleming, MD
Recruiting

16 more sites on the registry record.ClinicalTrials.gov ↗

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 20 Dec 2020
Primary completion: 30 Jun 2026
Completion: 1 Jul 2026
Last update posted: 21 May 2025
Registered enrollment: 25,000
Registry id: NCT04994015

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.