findmyKOL
Clinical trialNCT05046821Active, not recruitingObservational

Sporadic Inclusion Body Myositis Natural History Study

SponsorUniversity of California, IrvineEnrollment150Inclusion Body MyositisSporadic Inclusion Body Myositis
View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

This is a prospective natural history study on patients with clinically defined sIBM. Participants will be assessed every 6 months over two years (five visits total). We will include 150 participants, enrolled across 13 sites, with sporadic IBM, diagnosed according to established criteria.
clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

13 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States
  • University of California, Los Angeles

    Los Angeles, California, United States

  • University of California, Irvine

    Orange, California, United States

  • University of Colorado

    Aurora, Colorado, United States

  • University of Miami

    Miami, Florida, United States

  • Kansas University Medical Center

    Fairway, Kansas, United States

  • Johns Hopkins University

    Baltimore, Maryland, United States

  • Brigham and Women'S Hospital

    Boston, Massachusetts, United States

  • Washington University in St. Louis

    St Louis, Missouri, United States

  • Ohio State University

    Columbus, Ohio, United States

  • Oregon Health & Science University

    Portland, Oregon, United States

  • University of Pennsylvania

    Philadelphia, Pennsylvania, United States

  • Nerve and Muscle Center of Texas

    Houston, Texas, United States

  • University of Washington

    Seattle, Washington, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
11 Oct 2021
Primary completion
31 Mar 2027
Completion
31 Mar 2027
Last update posted
27 May 2026
Registered enrollment
150
Registry id
NCT05046821
clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.