FindMyKOL
Clinical trialNCT05161858CompletedObservational

Longitudinal Characterization of Respiratory Tract Exacerbations and Treatment Responses in Primary Ciliary Dyskinesia

SponsorUniversity of North Carolina, Chapel HillEnrollment105Kartagener SyndromePrimary Ciliary Dyskinesia
View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

The overall objective of this longitudinal, observational study is to provide information needed to inform the design of future interventional trials of respiratory exacerbation prevention and treatment in children and adults with primary ciliary dyskinesia (PCD).

Investigators

The overall officials registered on this study. Names that resolve to a FindMyKOL profile link to it; the rest are shown as registered.

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

7 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Canada
  • the Hospital for Sick Children

    Toronto, Ontario, Canada

  • Mcgill University

    Montreal, Quebec, Canada

United States
  • Stanford University

    Palo Alto, California, United States

  • Children'S Hospital Colorado

    Aurora, Colorado, United States

  • Washington University in St. Louis

    St Louis, Missouri, United States

  • University of North Carolina at Chapel Hill

    Chapel Hill, North Carolina, United States

  • Seattle Children'S Hospital

    Seattle, Washington, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
29 Mar 2022
Primary completion
30 Sept 2025
Completion
30 Sept 2025
Last update posted
10 Dec 2025
Registered enrollment
105
Registry id
NCT05161858

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; FindMyKOL does not interpret them.