DMCRN-02-001: Assessing Pediatric Endpoints in DM1
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Nicholas E. Johnson, MD
Virginia Commonwealth University
Principal Investigator
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
5 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- Centro Clinico Nemo
Milan, Italy
Valeria Sansone, MDRecruiting
- University of California, Los Angeles
Los Angeles, California, United States
Perry Shieh, MD, PhDRecruiting - University of Kansas Medical Center
Fairway, Kansas, United States
Jeffrey Statland, MDRecruiting - University of Rochester Medical Center
Rochester, New York, United States
Bohoon Lee, MDRecruiting - Virginia Commonwealth University
Richmond, Virginia, United States
Nicholas E. Johnson, MDRecruiting
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 24 Aug 2022
- Primary completion
- 31 Oct 2026
- Completion
- 31 Dec 2026
- Last update posted
- 10 Jun 2026
- Registered enrollment
- 50
- Registry id
- NCT05224778
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.