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Clinical trialNCT05241847CompletedInterventional

Starzl Network Patient Reported Outcomes

SponsorUniversity of PittsburghEnrollment200Adolescent BehaviorChild BehaviorLiver Transplant; ComplicationsQuality of Life
View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

This study uses a smartphone application/web interface (RealTime Clinic; RTC) to collect patient and parent reports of a pediatric liver transplant recipient's quality of life (QOL), and examines the extent to which QOL evaluations can be integrated into care with the help of the application. The QOL measure that is used in this study is the Pediatric Liver Transplant Quality of Life (PeLTQL) questionnaire. Utilization, effectiveness, and efficiency data are evaluated. Hypotheses are fully described in the protocol. The primary hypothesis is that 80% of recruited child-proxy dyads will have at least one RTC-enabled PeLTQL score at 12 months. Other hypotheses look at implementation metrics and patient outcomes.
clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a FindMyKOL profile link to it; the rest are shown as registered.

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

7 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Canada
  • Toronto Sick Kids

    Toronto, Ontario, Canada

United States
  • Ucsf Benioff Children'S Hospital

    Oakland, California, United States

  • Emory Children'S

    Atlanta, Georgia, United States

  • Columbia University Children'S

    New York, New York, United States

  • Mt. Sinai

    New York, New York, United States

  • Upmc Children'S

    Pittsburgh, Pennsylvania, United States

  • Seattle Children'S

    Seattle, Washington, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
28 Feb 2022
Primary completion
20 Mar 2024
Completion
30 Jul 2025
Last update posted
8 Jan 2026
Registered enrollment
200
Registry id
NCT05241847
clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 11 Nov 2026. Registry facts are shown as registered by the study sponsor; FindMyKOL does not interpret them.