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Clinical trialNCT06526741RecruitingObservational

ASF Alport Patient Registry

SponsorAlport Syndrome FoundationEnrollment2,500Alport SyndromeHereditary NephritisThin Basement Membrane Disease
View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

1 registered facility, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States
  • on-Line Only: Https://asfalportpatientregistry.Healthie.Net

    Scottsdale, Arizona, United States

    Bradley A Warady, MDMakabe Aberle, BS
    Recruiting

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
24 Aug 2023
Primary completion
23 Aug 2048
Completion
23 Aug 2048
Last update posted
14 Apr 2026
Registered enrollment
2,500
Registry id
NCT06526741
clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.