Nemaline Myopathy Clinical Research Network (NM-CTRN)
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Alan Beggs, PhD
Boston Children's Hospital
Principal Investigator - Carolina Tesi-Rocha, MD
Stanford University
Principal Investigator - Carsten Bonnemann, MD, PhD
National Institutes of Health (NIH)
Principal Investigator - Jim Dowling, MD, PhD
The Hospital for Sick Children
Principal Investigator - John W Day, MD, PhD
Stanford University
Principal Investigator - Kaitlin Batley, MD
UT Southwestern Medical Centre
Principal Investigator - Leslie Hayes, MD
Boston Children's Hospital
Principal Investigator - Richard Finkel, MD
St Jude Children's Hospital
Principal Investigator - Tina Duong, PT, PhD
Stanford University
Principal Investigator
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
6 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- the Hospital for Sick Children
Toronto, Ontario, Canada
- Stanford University/lucile Packard Children'S Hospital
Palo Alto, California, United States
- National Institute of Health
Bethesda, Maryland, United States
- Boston Children'S Hospital
Boston, Massachusetts, United States
- St Jude Children'S Research Hospital
Memphis, Tennessee, United States
- Ut Southwestern Medical Centre/children'S Health Dallas
Dallas, Texas, United States
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 31 Jan 2025
- Primary completion
- 31 Dec 2029
- Completion
- 31 Dec 2029
- Last update posted
- 14 Jan 2025
- Registered enrollment
- 50
- Registry id
- NCT06774703
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.