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Clinical trialNCT06847282RecruitingObservational

Motor Outcomes to Validate Evaluations in Pediatric FSHD (MOVE Peds)

SponsorUniversity of Kansas Medical CenterEnrollment80Muscular Dystrophy, Facioscapulohumeral
View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

The primary goal of this study is to validate motor and functional outcomes and refine clinical trial strategies for pediatric-onset FSHD
clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

7 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Australia
  • Murdoch Children'S Research Institute

    Melbourne, Australia

    Ian R Woodcock, MBBS PhD MSc MRCPCH(UK) FRACP
    Recruiting
United States
  • Stanford University

    Palo Alto, California, United States

    Carolina Tesi-Rocha, MD
    Not, yet, recruiting
  • University of Iowa

    Iowa City, Iowa, United States

    Katherine Mathews, MD
    Not, yet, recruiting
  • University of Kansas Medical Center

    Kansas City, Kansas, United States

    Recruiting
  • University of Rochester

    Rochester, New York, United States

    Brianna Brun, MDKaty Eichinger, DPT, PhD
    Recruiting
  • Duke University

    Durham, North Carolina, United States

    Natalie Katz, MD, PhD
    Recruiting
  • University of Utah

    Salt Lake City, Utah, United States

    Russell Butterfield, MD, PhD
    Not, yet, recruiting

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
22 May 2025
Primary completion
31 May 2027
Completion
31 May 2028
Last update posted
25 Feb 2026
Registered enrollment
80
Registry id
NCT06847282
clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.