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Clinical trialNCT07146516RecruitingInterventional

Retinal Detachment Prevention (Laser Prophylaxis) in Stickler Syndrome (SS)

SponsorHelen Keller Eye Research FoundationEnrollment500Stickler Syndrome Type 1Stickler Syndrome Type 2
View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

The goal of this clinical trial is to prospectively document to what extent the OSC/SS prophylactic laser retinopexy procedure works to prevent retinal detachment in SS in children and adults. Researchers will compare the OSC/SS procedure in SS to the natural progression of SS to see to what extent the OSC/SS procedure works to prevent retinal detachment. Participants will: * Have the OSC/SS procedure in one or both eyes * Have eye tests * Have genetic testing for SS as needed * Visit the study center 9 times over 5 years for checkups and tests * Have data for the untreated fellow-eye collected and used as study data if available
clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

5 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States
  • Retina Specialists of Alabama

    Birmingham, Alabama, United States

    Mathew Sapp, MD
    Recruiting
  • Associated Retinal Consultants, P.C.

    Royal Oak, Michigan, United States

    Matthew Trese, D.O.
    Recruiting
  • Retina Consultants of Minnesota

    Minneapolis, Minnesota, United States

    Peter J Belin, MD
    Recruiting
  • Mayo Clinic

    Rochester, Minnesota, United States

    Recruiting
  • Tennessee Retina, P.C.

    Nashville, Tennessee, United States

    Franco Recchia, MD
    Recruiting

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
30 Oct 2025
Primary completion
31 Dec 2035
Completion
31 Dec 2035
Last update posted
1 Jul 2026
Registered enrollment
500
Registry id
NCT07146516
clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.