FindMyKOL
Clinical trialNCT07732608Not, yet, recruitingObservational

PROSPECT Registry for Individuals at Risk for Genetic Prion Disease

SponsorUniversity Hospitals Cleveland Medical CenterEnrollment1,000Prion Diseases
View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

PROSPECT is a prospective observational registry and longitudinal natural history study of adults at risk for genetic prion disease.

Investigators

The overall officials registered on this study. Names that resolve to a FindMyKOL profile link to it; the rest are shown as registered.

  • Brian S Appleby, M.D.

    Case Western Reserve University/University Hospital's Cleveland Medical Center

    Principal Investigator

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

No facility list is in our current data snapshot for this study. The registry record on ClinicalTrials.gov ↗ carries any published locations. Why? →

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
17 Aug 2026
Primary completion
31 Aug 2036
Completion
31 Aug 2036
Last update posted
30 Jul 2026
Registered enrollment
1,000
Registry id
NCT07732608

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; FindMyKOL does not interpret them.