Rare Kidney Stone Consortium Patient Registry
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- David Goldfarb, MD
Cystinuria Registry, New York University, NY
Study Director - Dawn S. Milliner, M.D.
Primary Hyperoxaluria Registry - Mayo Clinic, Rochester, MN
Principal Investigator - John C Lieske, MD
Dent Disease Registry, Mayo Clinic, Rochester, MN
Study Director - Vidar Edvardsson, MD
APRT Registry, Landspitali University Hospital, Iceland
Study Director
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
4 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- Aprt Registry - Landspitali Universtiy Hospital
Reykjavik, Iceland
Vidar Edvardsson, MDRecruiting
- Dent Disease Registry -Mayo Clinic
Rochester, Minnesota, United States
John C Lieske, MDRecruiting - Primary Hyperoxaluria Registry - Mayo Clinic
Rochester, Minnesota, United States
Dawn S. Milliner, MDRecruiting - Cystinuria Registry - New York University
New York, New York, United States
David Goldfarb, MDRecruiting
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 31 Jul 2003
- Primary completion
- 30 Jun 2028
- Completion
- 30 Jun 2028
- Last update posted
- 10 Jul 2026
- Registered enrollment
- 730
- Registry id
- NCT00588562
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.