Clinical trialNCT02780297RecruitingObservational

Prospective Research Rare Kidney Stones (ProRKS)

SponsorMayo ClinicEnrollment220Adenine Phosphoribosyltransferase DeficiencyCystinuriaDent DiseaseHyperoxaluriaLowe Syndrome

View the registry record on ClinicalTrials.gov

Summary

The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

John Lieske, MD
Mayo Clinic
Principal Investigator
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

11 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

Canada

Hosptial of Sick Children
Toronto, Ontario, Canada
Elizabeth Harvey, MD
Not, yet, recruiting

Iceland

Landspitali Universtiy Hospital
Reykjavik, Iceland
Vidar Edvardsson, MD
Not, yet, recruiting

Israel

Shaare Zedek Medica Center
Jerusalem, Israel
Yaacov Frishberg, MD
Not, yet, recruiting

United States

University of Alabama @ Birmingham
Birmingham, Alabama, United States
Dean Assimos, MD
Not, yet, recruiting
Mayo Clinic Jacksonville
Jacksonville, Florida, United States
William Haley, MD
Not, yet, recruiting
Children'S Memorial Hospital
Chicago, Illinois, United States
Craig Langman, M.D.
Not, yet, recruiting
Children'S Hospital, Harvard Medical School
Boston, Massachusetts, United States
Michelle Baum, MD
Not, yet, recruiting
Mayo Clinic Hyperoxaluria Center
Rochester, Minnesota, United States
Dawn Milliner, MD
Recruiting
New York University
New York, New York, United States
David Goldfarb, MD
Not, yet, recruiting
Cincinnati Children'S Hosptial Medical Center
Cincinnati, Ohio, United States
Prasad Decarajan, MD
Not, yet, recruiting
Children'S Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
Lawrence Copelovitch, MD
Not, yet, recruiting

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 31 May 2016
Primary completion: 31 Jul 2026
Completion: 31 Jul 2026
Last update posted: 6 Aug 2025
Registered enrollment: 220
Registry id: NCT02780297

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.