A Phase II Study of the mTOR Inhibitor Sirolimus in Neurofibromatosis Type 1 Related Plexiform Neurofibromas
Summary
The registered summary isn't in our current data snapshot. Read it on the ClinicalTrials.gov record ↗. Why? →
Investigators
The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.
- Brian Weiss, MD
Children's Hospital Medical Center, Cincinnati
Principal Investigator - Bruce Korf, MD
The University of Alabama at Birmingham
Principal Investigator - Roger Packer, MD
Children's National Medical Center - Chairman of the NF Consortium
Study Director
A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.
Sites
9 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.
- the University of Alabama at Birmingham
Birmingham, Alabama, United States
- Children'S National Medical Center
Washington D.C., District of Columbia, United States
- University of Chicago
Chicago, Illinois, United States
- National Cancer Institute (nci)
Bethesda, Maryland, United States
- Children'S Hospital Boston
Boston, Massachusetts, United States
- Washington University
St Louis, Missouri, United States
- Cincinnati Children'S Hospital Medical Center
Cincinnati, Ohio, United States
- Children'S Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
- University of Utah
Salt Lake City, Utah, United States
Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.
Drugs studied
No drug or biological interventions are in our data for this study — it may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →
Registration & key dates
Registry attributes as recorded on the ClinicalTrials.gov study record.
- Start
- 30 Apr 2008
- Primary completion
- 30 Nov 2014
- Completion
- 31 Dec 2015
- Last update posted
- 17 Nov 2017
- Registered enrollment
- 58
- Registry id
- NCT00634270
Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 12 Jul 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.