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Clinical trialNCT01697254CompletedObservational

The CARRA Registry

SponsorDuke UniversityEnrollment9,587Auto-inflammatory DiseaseFibromyalgia, PrimaryIdiopathic Uveitis IdiopathicJuvenile Ankylosing SpondylitisJuvenile DermatomyositisJuvenile Idiopathic Arthritis+6 more conditions
View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

This CARRA Registry study will create a foundational database for rheumatic diseases of childhood using a novel informatics infrastructure developed as part of the larger clinical project. The creation of a CARRA-wide informatics infrastructure will enable efficient, observational, disease-related data capture across all CARRA sites for pediatric rheumatic diseases. The CARRA Registry study will demonstrate the feasibility of expanding to more data intensive registries for observational studies, comparative effectiveness research, pharmaceutical clinical trials and translational research.
clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

  • Carol Wallace, MD

    Seattle Children's Hospital/ University of Washington School of Medicine

    Principal Investigator
    clinicaltrials.gov ↗
  • Christy Sandborg, MD

    Lucile Salter Packard Children's Hospital/Stanford University School of Medicine

    Principal Investigator
    clinicaltrials.gov ↗
  • Laura Schanberg, MD

    Duke University

    Principal Investigator
    clinicaltrials.gov ↗
  • Norman T Illowite, MD

    Children's Hospital at Montefiore

    Principal Investigator
    clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

1 registered facility, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States
  • Duke Clinical Research Institute

    Durham, North Carolina, United States

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start
31 Aug 2009
Primary completion
31 Oct 2015
Completion
31 Oct 2015
Last update posted
17 Nov 2015
Registered enrollment
9,587
Registry id
NCT01697254
clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.