Clinical trialNCT01915511RecruitingObservational

Idiopathic Pulmonary Fibrosis and Interstitial Lung Disease Prospective Outcomes Registry

SponsorDuke UniversityEnrollment3,000Idiopathic Pulmonary Fibrosis, Interstitial Lung Disease

View the registry record on ClinicalTrials.gov

Summary

The lay summary the sponsor registered on ClinicalTrials.gov.

The Idiopathic Pulmonary Fibrosis Prospective Outcomes (IPF-PRO) Registry started recruiting in 2014 with the objective of studying Idiopathic Pulmonary Fibrosis. In 2018, the registry expanded to include recruitment of participants with other chronic fibrosing interstitial lung diseases (ILDs) with progressive phenotype also referred to as progressive fibrosing interstitial lung diseases in the Chronic Fibrosis Interstitial Lung Disease with Progressive Phenotype (ILD-PRO) Registry. When the third phase of the registry begins, the IPF-PRO registry will enroll additional patients with idiopathic pulmonary fibrosis. This IPF-PRO registry is a prospective registry that will collect information regarding the natural history, health care interactions, participant reported questionnaire data to assess quality of life, and the methods of treatment of participants with a diagnosis of idiopathic pulmonary fibrosis (IPF) or of another chronic fibrosing interstitial lung disease (ILD) with progressive phenotype established at the enrolling centers. In addition, blood samples and chest image studies will be collected and banked for future research projects.

clinicaltrials.gov ↗

Investigators

The overall officials registered on this study. Names that resolve to a findmyKOL profile link to it; the rest are shown as registered.

Scott Palmer, MD
Duke Clinical Research Institute, Duke University
Principal Investigator
clinicaltrials.gov ↗

A profile link is shown only when the registered name resolves to a person record with a confident, namesake-checked match; ambiguous names stay unlinked.

Sites

47 registered facilities, with the per-site recruitment status where the registry publishes one. ClinicalTrials.gov does not publish per-site enrollment counts.

United States

University of Alabama - Birmingham
Birmingham, Alabama, United States
Tejaswini Kulkarni, MD
Recruiting
University of Arizona
Tucson, Arizona, United States
Sally A Suliman, MD
Recruiting
University of California - Los Angeles
Los Angeles, California, United States
John Belperio, MD
Recruiting
University of Southern California
Los Angeles, California, United States
Toby Maher, MD
Recruiting
Stanford University
Stanford, California, United States
Rishi Raj, MD
Recruiting
University of Colorado
Aurora, Colorado, United States
Joyce Lee, MD
Recruiting
Yale University
New Haven, Connecticut, United States
Mridu Gulati, MD
Recruiting
University of Florida
Gainesville, Florida, United States
Diana Gomez Manjarres, MD
Recruiting
University of South Florida
Tampa, Florida, United States
Jose D Herazo-Maya, MD
Recruiting
Emory University
Atlanta, Georgia, United States
Srihari Veeraraghavan, MD
Recruiting
Piedmont Healthcare
Austell, Georgia, United States
Amy Case, MD
Recruiting
University of Chicago
Chicago, Illinois, United States
Mary Strek, MD
Recruiting
Northwestern University
Evanston, Illinois, United States
Bradford Bemiss, MD
Recruiting
Loyola University Health System
Maywood, Illinois, United States
Daniel Dilling, MD
Recruiting
University of Kansas
Kansas City, Kansas, United States
Terminated
Tulane University
New Orleans, Louisiana, United States
Joe Lasky, MD
Recruiting
University of Michigan
Ann Arbor, Michigan, United States
Active, not recruiting
Henry Ford Health
Detroit, Michigan, United States
Asif Abdul Hameed, MD
Recruiting
University of Minnesota
Minneapolis, Minnesota, United States
Hyum Kim, MD
Recruiting
University of Mississippi Medical Center
Jackson, Mississippi, United States
Kimberly Dobbs, MD
Recruiting
Washington University
St Louis, Missouri, United States
Tonya Russell, MD
Recruiting
Nyu Medical Center
New York, New York, United States
Active, not recruiting
Weill Medical College of Cornell University
New York, New York, United States
Kerri Aronson, MD
Recruiting
Unc Chapel Hill
Chapel Hill, North Carolina, United States
Jason Lobo, MD
Recruiting
Duke University
Durham, North Carolina, United States
Lake Morrison, MD
Recruiting
Pulmonix Llc
Greensboro, North Carolina, United States
Murali Ramaswamy, MD
Recruiting
Pmg Research
Wilmington, North Carolina, United States
Active, not recruiting
Wake Forest Baptist Health
Winston-Salem, North Carolina, United States
Andrew Namen, MD
Recruiting
University of Cincinnati Medical Center
Cincinnati, Ohio, United States
Active, not recruiting
Cleveland Clinic
Cleveland, Ohio, United States
Briam Southern, MD
Recruiting
the Ohio State University
Columbus, Ohio, United States
John Odackal
Recruiting
University of Oklahoma
Oklahoma City, Oklahoma, United States
Jad Kebbe, MD
Recruiting
Oregon Clinic
Portland, Oregon, United States
David Hotchkin, MD
Recruiting
Temple University
Philadelphia, Pennsylvania, United States
Rachel Criner, MD
Recruiting
Thomas Jefferson University
Philadelphia, Pennsylvania, United States
Ross Summer, MD
Recruiting
Medical University of South Carolina
Charleston, South Carolina, United States
Timothy Whelan, MD
Recruiting
Vanderbilt University
Nashville, Tennessee, United States
Justin Hewlett, MD
Recruiting
Baylor University Medical Center at Dallas
Dallas, Texas, United States
Yolanda Mageto, MD
Recruiting
University of Texas Southwestern
Dallas, Texas, United States
John Fitzgerald, MD
Recruiting
Baylor College of Medicine
Houston, Texas, United States
Ivan Rosas, MD
Recruiting

7 more sites on the registry record.ClinicalTrials.gov ↗

Site investigator names are published by ClinicalTrials.gov only while a study recruits, so completed studies list sites without them.

Drugs studied

No drug or biological interventions are in our data for this study. It may test a procedure, device or behavioral intervention, or the intervention list isn't in our current snapshot. See the registry record ↗. Why? →

Registration & key dates

Registry attributes as recorded on the ClinicalTrials.gov study record.

Start: 30 Jun 2014
Primary completion: 31 Jan 2028
Completion: 31 Jan 2031
Last update posted: 12 Aug 2026
Registered enrollment: 3,000
Registry id: NCT01915511

clinicaltrials.gov ↗

Source: ClinicalTrials.gov, via the CTTI AACT database, data as of 24 Aug 2026. Registry facts are shown as registered by the study sponsor; findmyKOL does not interpret them.